Useful Documents
“Hospital Booklet”
Information for hospital staff regarding treatment of patients with M.E.
(Myalgic Encephalomyelitis)
Click to Download the PDF Document 573Kb Click to Download the Word Document 5 Mb
We have also produced a form letter for you to send to your MP.
Click the link below to download a copy.
To contact your MP, see 'Useful Links' below.
Click to Download the Word Document 40Kb
“Saying No Can Be Positive”empowers sufferers who wish to refuse psychological therapies.
Click to Download the Word Document 60 Kb Click to Download the PDF Document 52 Kb
Note: You will need Adobe Acrobat Reader software to view the PDFs
You can download this for free by clicking here
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Useful Links
The 25% ME Group is a unique nationwide charitable organisation managed mainly by volunteers (most of whom are severely affected by ME). It was set up to offer support services to those severely affected by ME (Myalgic Encephalomyelitis) and their carers. www.25megroup.org
In order to contact your MP about M.E., you can find out who they are and their contact details at www.parliament.uk. Enter your postcode in the Members & Staff page. Or phone (0207) 2194272.
Before our treatment survey results are compiled, in the meantime, you will probably find the following information site helpful: www.ahummingbirdsguide.com The Hummingbird site is the hard work of severe sufferer Jodi Bassett. Despite being virtually bedbound from M.E., Jodi has compiled a wealth of fantastic information about M.E., including ideas for treatment. She is an artist and lives in Australia.
The best medical guidelines to date are probably the Candian Guidelines [published in 2005]. These guidelines have been sent to every GP surgery in Kent and Medway. Check that your GP has a copy. This booklet can be obtained in hard copy via the charity Invest in M.E., or in electronic form: http://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf